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Diseases

Addison's disease

Addison Disease Self Help Group

 The Addison’s Disease Self-Help Group (ADSHG) is the UK support group for men, women and children with adrenal insufficiency.  The group is a UK registered charity and the support group has been running since 1984. The group has around 850 members, of whom nearly 640 are women.  They range in age from roughly 8 to 91 years old.  Most of the members live within the United Kingdom.

 

AIDS/HIV

 Terence Higgins Trust

THT was one of the first charities to be set up in response to the HIV epidemic and has been at the forefront of the fight against HIV, and improving the nation's sexual health, ever since.

ACET International

ACET is a practical and compassionate response to HIV & AIDS and works to support the rapidly growing ACET International Alliance. The Alliance is a group of independent organisations around the world working to reduce the rates of new HIV infections, care for those affected by HIV & AIDS and support AIDS orphans.

 

Allergy

 British Allergy Foundation

Allergy UK is the country's leading medical charity dealing with allergy and we are here to help you.

Our dedicated helpline is manned by a team of fully trained allergy advisors. However, it's not just a helpline - in fact, it's a lifeline, providing invaluable support and information for allergy sufferers.

We can give you the time and support that is so important when faced with what can be life changing conditions.

 

http://www.rcpath.org/resources/pdf/allergy_doc.pdf

Allergy and allergy tests - A guide for patients and relatives. June 2014.

 

http://www.foodallergy.org/

The Food Allergy & Anaphylaxis Network (FAAN) was established in 1991. FAAN's membership now stands at more than 25,000 worldwide and includes families, dietitians, nurses, physicians, school staff, representatives from government agencies, and the food and pharmaceutical industries. FAAN serves as the communication link between the patient and others.

 

 

http://www.pslgroup.com/allergies.htm

The latest medical news and information for patients or friends/parents of patients diagnosed with allergies. From The Doctors Guide.



Alzheimer's Disease

 Alzheimer's Disease Society

 

 Anaemias

 Sickle Cell Society

  

Arthritis

 Arthritis and Rheumatism Council

Arthritis Research Campaign

 

 

The Arthritis Research Campaign (arc), founded in 1936, raises funds to promote medical research into the cause, treatment and cure of arthritic conditions: to educate medical students, doctors and allied healthcare professionals about arthritis and to provide information to people affected by arthritis and to the general public.

More than seven million people in the UK have long-term health problems due to arthritis or a related condition. Arthritis is the second most common cause of time off work among both men and women. One child in every thousand has a childhood form of arthritis, belying the perception that it is a conditon that only affects the elderly.

arc is the only major medical research charity in the UK investigating arthritis in all its forms. Millions of pounds are provided every year for grants funding research, education and training.

It includes practical advice on management of rheumatic disease: Carpal Tunnel Syndrome

 

 

Arthritis Cares
Arthritis Care
International League of Associations for Rheumatology
Primary Care Rheumatology Society

 

 



Anthony Nolan Trust

 

 

Anthony Nolan Trust

 

 



Asthma

 

Useful websites

 

Asthma - Doctors guide to the internet
Astma Research Unit (University of Dundee)
Astmaweb
Children's Asthma Centre
WebMd
Scottish Respiratory Site

 

 

 

 

 

General Practitioners in Asthma Group

 

 

General Practitioners in Asthma Group (GPIAG) are an educational and research group for GPs with an interest in asthma. It was formed in 1987 and has steadily grown in strength and influence, with current membership standing at more than 715. It holds an annual Scientific Meeting, with presentations from group members and invited speakers, and the proceedings are published in a journal for distribution to the full membership. Members receive regular newsletters and factsheets giving a brief overview of specific asthma topics. Sister groups have been established in Australia, Canada, Ireland and Holland.

 

 

 

The British Thoracic Society

 

 

The British Thoracic Society is the official body of respiratory specialists. It was formed in 1982 by the amalgamation of the British Thoracic Association and the Thoracic Society. It has grown over the last few years to include medical practitioners, nurses, scientists and any professional with an interest in respiratory disease. In March 2000 there were 2017 members. The Society is a registered charity and a company limited by guarantee. Its core functions are:

The relief of sickness of people with respiratory and associated disorders by the promotion of the highest standards of clinical care and the undertaking of research into the causes, prevention and treatment of respiratory and associated disorders, and disseminating the results of such research

The preservation and protection of public health by the provision of information in matters concerning respiratory and associated disorders and how they might be prevented.

 

 

 

Asthma & Allergy Research

 

 

The British Lung Foundation

 

 

 

http://www.inspiratory.com/

 

 

 

 

 

National Asthma Campaign

 

 

 

 

 

 

The Asthma Helpline
0345 010203
Monday to Friday 9am to 7pm

 

 

 

 

 

Sources of Equipment

 

 

Micro Medical - Offers Simple Spirometry equipment.
Clement Clark International

 

 

Sources of Training & Courses

 

 

National Asthma & Respiratory Training Centre - Offers a range of distant learning courses.



Cancer

Data published by the World Health Organisation indicate that:

• Annually, seven million new cancer patients are diagnosed throughout the world

• Annually, five million people die of cancer

• 1 in 3 of the population in Western nations develops cancer

• 1 in 4 of the population in Western nations dies of cancer

World Health Organisation. Expert Committee Report. Cancer Pain Relief and Palliative Care. Technical Report Series No. 804. Geneva: WHO, 1990

 

 

 

 

 

 

Useful websites

 

 

Department of Health - Policy and guidance - Health and social care topics - Cancer

 

 

Information, policy documents and advice for healthcare professionals involved in the prevention, diagnosis and treatment of all types of cancer. The Department’s overall cancer strategy is set out in the September 2000 ‘NHS Cancer Plan’.

 

 

Primary Care Cancer Lead Support Programme

 

 

This site forms an integral part of the Macmillan Support Programme for the PC Ca Leads community. Logged in users are able to view an enhanced version of the site and participate in the discussion forum, which aims to encourage PC Ca Leads to share experiences and good practice.To be eligible to access the secure area you must be a PC Ca Lead registered with the Macmillan Support Programme.

 

 

www.cancerscreening.nhs.uk

 

 

The cancer screening programmes in England are nationally coordinated. BreastCervixBowelProstate

 

 

www.doh.gov.uk/cancer

 

 

Provides access to the following documentation:
• Manual of Cancer Services Standards
• Cancer Information Strategy
• National Database of Radiotherapy Provision
• Survey of Palliative Care Provision
• Cancer Nursing Strategy
• Referral Guidelines & Referral Proforma

 

 

www.modern.nhs.uk/cancer/primarycare

 

 

Primary Care is a new addition to the Cancer Services Collaborative 'Improvement Partnership' and was established in 2014 with the aim of fully integrating primary care into the work of the CSC. It has three priorities:

 

  • early diagnosis - focussing on early diagnostic pathways

  • communication - professional to professional and professional to patient and carer

  • supportive care throughout the pathway - focussing on patient information, cancer registers and co-ordination of the pathway.

One of the so-called 'cross tumour areas' - because of its impact on all cancers throughout the patient pathway the CSCIP is working together with the Networks and the Cancer Action Team to redesign processes so that patient and carer experiences of cancer care are improved.

Currently 34 pilot projects focussing on mapping the primary care journey from the patients perspective, eliciting patient views about primary care cancer services, working with their specialist colleagues to identify bottlenecks and then develop an action plan.

The projects are brought together in a series of workshops to share issues, challenges ad successes.

The primary care toolkit is being revised to equip the teams with basic redesign skills applied to primary care to support clinical teams to look at the services they provide. The project guidance includes easy instructions to:

  • set up and organise mapping the patient journey

  • understanding human dimensions of change

  • integrate primary care into service redesign


 

 

 

The NHS Cancer Plan

 

 


 

 

Executive Summary of the NHS Cancer Plan

 

 


 

 

Cancer Reform Strategy

 

 


 

 

CHI - NATIONAL SERVICE FRAMEWORK ASSESSMENTS NO.1 NHS Cancer Care in England and Wales

 

 

This major new study by the Commission for Health Improvement and the Audit Commission looks at the progress the NHS has made in England and Wales on implementing the framework set out in the Calman-Hine report, a key report on cancer services published in 1995. The report is structured around patients' experiences of cancer and the complicated system of multiple services with which they come into contact.

 

 

Befriending Network

 

 

The Befriending Network was established in the UK in 1994 to help improve the quality of life for people living at home with a terminal or life-threatening illness. Our trained volunteers offer emotional and practical support through their regular visits. The person who is being befriended decides with the volunteer how the relationship is to develop.

 

 

Cancer Dataset Project

 

 

This site provides information and guidance on the national initiative to provide datasets that will assist cancer service providers in the sharing of data across all healthcare boundaries and support patient care and comparisons of cancer information.

 

 

Primary Care Cancer Dataset Project

 

 

This site provides information and guidance on the national initiative to provide datasets that will assist primary care cancer service providers in the sharing of data across all healthcare boundaries and support patient care and comparisons of cancer information.

 

 

The Genetics of Cancer

 

 

The purpose of this site is to provide an information resource to help you understand the genetic basis of cancer and to be able to interpret new discoveries in the field of cancer genetics. We have created the site in three sections that interconnect but offer different ways into both clinical and basic information on cancer, genetics, and the role of genetics in causing cancer. OR... just start anywhere your curiosity suggests.

 

 

Cancer Help UK

 

 


 

 

CancerSupportUK

 

 

The Royal Marsden in conjunction with local groups in Kensington, Chelsea and Westminster have compiled a handbook and website (www.CancerSupportUK.org.uk) for local people with cancer and their families. The Handbook and website covers information about local support and advice centres, social services and welfare advice, complementary therapies and cancer services.

 

 

Guide to Internet Resources for Cancer

 

 

This guide contains over 100 pages of links to cancer related information. Many sites contain information for both the public and for health professionals. For your convenience sites which are intended exclusively for health professionals are labelled as such. The pages are regularly updated with new links, and are periodically verified using a link-checker.

 

 

A Patients Perspective - Michele Angelo Petrone.

 

 

An exhibition of images and words of the emotions and feelings experienced during my cancer journey

 

 

CancerNet (USA)

 

 

Credible, current, comprehensive cancer information from the National Cancer Institute (USA), including types of cancer, cancer treatment options, clinical trials, cancer literature, cancer genetics, risk factors, prevention, testing, and more.

 

 

CancerBACUP

 

 

A UK comprehensive cancer resource. Providing information to the public and health professionals. It includes links to free cancerlit and Medline searches. There is an interactive section to allow users to access information to their specific circumstances.
Helps people with cancer, their families and friends live with cancer. Cancer nurses provide information, emotional support and practical advice by telephone or letter. Booklets, factsheets, a newsletter, website and CD-ROM provide information.
Address: 3 Bath Place, Rivington Street, London EC2A 3DR
Tel: 020 7 6969003
Fax: 020 7 6969002
Cancer information freephone: 0808 800 1234
website:
www.cancerbacup.org.uk

Controversial cancer topics

CancerBACUP's Medical Advisory Committee Reports.

These reports listed below are written for doctors on complex and controversial cancer topics and can be accessed from the links below with permission from CancerBACUP.

 

 

 

  Report
1 Breast cancer and hormone replacement therapy
2 Cancer screening: cervix, breast, ovary, colorectal, prostate
3 Gynaecological cancers, the pill, hormone replacement therapy and tamoxifen
4 Current issues in the treatment of early and locally advanced prostate
5 Current issues in the treatment of metastatic prostate cancer
6 Clinical trials
7 Fatigue in cancer patients
8 Travel and Cancer - Information and advice suitable for patients and their carers
9 Effects of cancer treatment on fertility

CancerBACUP www.cancerbacup.org.uk
Charity registration number: 1019719



 

 

Royal Marsden Hospital

 

 

Patient information booklets, cancer support groups and links to other cancer sites.

 

 

Cancerline UK

 

 

Cancerline UK is a resource website for cancer networks and multi-disciplinary teams (MDTs) working in primary and secondary care, and is provided by AsraZeneca Oncology as a service to oncology and cancer care in the UK. The information on the website has been independently re-viewed and edited by recognised experts in the field of cancer. The site aims to offer a range of educational and informational services as well interactive tools for different members of the MDT's with the aim of making their job easier and allowing them to focus on patient care.

 

 

NHS Exec Publication - Referral Guidelines for Suspected Cancer

 

 

These can also be found on the NHSWeb at http://nww.doh.nhsweb.nhs.uk/cancer/. Suggested referral proforma can be found on http://www.doh.gov.uk/cancer/proforma.

 

 

British Brain and Spine Foundation

 

 

Helpline provides information and snpport about neurological disorders for patients, carers and health professionals. Free, confidential and open: 9am-lpm weekdays except Wednesday. 10am-6pm on Wednesday.
Address: 7 Winchester House, Kennington Park, Cramner Road, London, SW9 6EJ
Tel: 0808 8081000
E-mail: info@bbiforg.uk
website: www.bbsforg.uk

 

 

Cancer Care Society

 

 

Provides social and emotional support for people with cancer and their families and friends. One-to-one, group and telephone counselling by trained counsellors, and telephone link enabling people in similar circumstances to be put in touch with one another.
Address: Jane Scarth House, 39 The Hundred, Romsey, Hants S051 8GE
Tel: 01794 830374
website: www.cancer-care-soc.demon.co.uk

 

 

Chai Cancer Support and Centre for Health
Changing Faces
The Consumers Association
BBC: Cancer and you
Imperial Cancer Research Fund

 

 


 

 

CancerWEB

 

 

This cancer resource site has information available on many different aspects of cancer, investigation and treatment.

 

 

Cancer Research Campaign

 

 

View the latest UK incidence and mortality figures at www.crc.org.uk Detailed reports on cancer statistics. Some reports deal with specific cancers; others address patterns of incidence, survival and risk.
CRC CancerStats provide....
                • UK incidence, survival and mortality data
                • An analysis of trends for the UK
                • An analysis of known risk factors and genetic predisposition, where understood
                • A discussion of the impact of screening programmes and of early detection
                • A summary of the basic science and pathology
                • A brief discussion of symptoms and treatment, with carefully chosen references
                • An overview of world-wide variations

 

 

Bacup
NYCRIS

 

 

The Northern & Yorkshire Cancer Registry And Information Service (NYCRIS) is responsible for the collection, analysis and dissemination of cancer data for the whole of the Northern & Yorkshire region.

 

 

Bristol Cancer Help Centre

 

 

Opened in 1980 with a clear vision - of a new, holistic approach for cancer patients embracing a partnership between orthodox medicine and the best complementary therapies and care. The Bristol Cancer Help Centre aims to be a centre of excellence offering healing and positive healthcare to people affected by cancer, and to their supporters.

 

 

British Red Cross Society

 

 

Cares for people in crisis. Volunteers provide local services including transport and escort, medical loan and domiciliary care. For more information, contact your local branch.
Address: 9 Grosvenor Crescent, London SWIX 7EJ
Tel: 020 72355454
Fax: 020 7245 6315
website: www.redcross.org.uk

 

 

CancerMaster.com

 

 

A Directory of Cancer Resources & Support Organisations ( A reciprocal link site )


 

 

 

 

 

 

Regional Cancer Websites

 

 

North West Regional Cancer Website

 

 

This website has been developed by Regional Cancer Modernisation Team to provide information about all aspects of cancer. It is aimed mainly at health professionals but can also be used by members of the public. Within the site you will find National Clinical guidelines, including the two week cancer referral guidelines, NICE, SIGN and BASO, referral pathways to North West Cancer Units, palliative care prescribing guidance, good practice standards, the SPOTLIGHT and HELP educational series, information leaflets for patients and their carers, links to reputable medical journals, such as the BMJ and Bandolier, and links to voluntary cancer organisations.There are four main information groups.

  • Clinical Guidelines on the diagnosis and management of particular cancers, including national guidelines and referral forms to local hospitals in the North West Region.
  • Educational material to enhance learning for health workers. This will be most useful for people in primary care but can also help other health professionals, even those working in hospitals.
  • Information for patients and their carers, written in plain language and easily printed out to be given to people to take home and read at their leisure.
  • Information on government and regional office initiatives to improve cancer care, such as the Cancer Plan, details on the new cancer networks and the membership of the North West Regional Cancer Modernisation Team.


 

 

Northern Cancer Network Cancer Website

 

 

This web site is for cancer patients, their families, friends and carers.
In it, you can…

  • find out about cancers, tests and treatments, side effects and many other subjects

  • get advice on living and coping with cancer

  • find out about cancer services in the Northern Cancer Network (NCN)

  • look for sources of information, advice and support.

Information in this site is tailored to patients in the NCN area. If you live outside the area, you may still find this site to be a useful source of information. Please remember, though, that clinical practice may be different in your area. Please speak with your own health care team if you have a query about this.

 

 

 

 

 

 

Useful Books

CancerBACUP Feeling Beter - Controlling Pain and Other Symptoms of Cancer(1999) CancerBACUP
Summerton N. Diagnosing cancer in primary care. Oxford, Radcliffe Medcial Press. 1999

 

 

 

 

 

 

Site Specific Information

 

 

BreastColorectalLungOvarianProstateUpper GI

 

 



Cystic Fybrosis

 

 

CF Foundation

 

 

The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

 

 

Cystic Fybrosis trust

 

 

Since the founding of the CF Trust in 1964, we have been working to improve the lives of people with CF, raise the profile of CF and fund research into a cure. Our objectives are to: Fund medical and scientific research to develop a cure and provide effective treatments for Cystic Fibrosis. Ensure appropriate clinical care for those with Cystic Fibrosis. Provide information, advice, support and, where appropriate, financial assistance to anyone affected by Cystic Fibrosis.

 

 

 

 

 

 

 

 

 

Website for Cystic Fybrosis professionals

 

 

 

 

 



Deafness

One in five adults experiences significant hearing difficulties. Only half of them have talked to their GP about their difficulties and fewer than a third have had a full hearing test.

 

 

 

 

 

 

 

Sound of success
In the first of a new series, Graham Clews looks at how one practice won beacon status through its work with the deaf and hard of hearing. Research carried out by the Royal National Institute for Deaf People has shown that almost a quarter of patients leave a consultation with their GP not having heard or understood what their doctor told them because of hearing difficulties.
  And with deafness affecting one in five people over the age of 18, Bristol GP Judith Langfield has been awarded NHS beacon status after gearing her surgery up to improve communication with deaf and hard of hearing patients.
Herself a hearing aid wearer for five years, Dr Langfield says she understands the difficulties faced by people whose hearing is not perfect.
'I have been in situations where 1 have had to ask three times what someone is saying and still not understood. You don't feel you can keep asking, she says.
'And when a patient is speaking to their doctor, it can be even more difficult to go on asking for things to be repeated, so people just go away not knowing.'
Dr Langfield has had tiny amplifiers installed in the consultation rooms at her two-partner surgery, which makes it easier to hear what she, or her fellow doctor, is telling the patient. All staff at the practice have been on deaf awareness courses that have taught them how to speak more clearly and slowly, face the person they are talking to and be willing to repeat themselves.
And a mini loop system has also been put into the reception area, which transmits to anyone wearing a hearing aid within three feet of the reception desk. The surgery also has a textphone that allows deaf people to contact the surgery without having to use an intermediary.
Dr Langfield says: 'This all came about because 1 am hard of hearing myself. There has been more interest in communication skills in surgeries generally, and this makes it easier for our hard of hearing patients
'It has been a huge success and you see patients' eyes fight up when they see the loop in the reception and find out the improvements we have made.'
Dr Langfield hopes her surgery's beacon status will act as a spur to other GPs to make their practices more hard of hearing-friendly.
'Hopefully, other doctors will follow our lead, And I think the minimum surgeries should have to introduce is basic deaf awareness training for GPs and surgery staff, and some portable amplifiers to make hearing easier,' she says.
SEPTEMBER 16 2000 BMA NEWS REVIEW

 

 

 

Useful websites

The Royal National Institute for Deaf People

 

 

RNID is the largest charity representing the 9 million deaf and hard of hearing people in the UK. Our vision is a world where deafness and hearing loss are not barriers to opportunity and fulfilment.

 

 

Deaf and Hard of Hearing

 

 


 

 

Deafblind UK

 

 

Deafblind UK is the national association of deafblind and dual sensory impaired people in the UK.


Dental Problems

 

 

Information for Dentalphobics
British Dental Health Foundation

 

 



Depression

 

 

Depression Alliance

 

 

Depression Alliance assists people affected by depression, thorough campaigns such as depression awareness week, their aims are to raise awareness of depression and support those with the illness through ideas such as self help groups.



 

 

Mind

 

 


Mind is the leading mental health charity in England and Wales working for a better life for everyone experiencing mental distress.


Diabetes

Useful websites

 

 

British Diabetic Assosiation
Diabetes: Adults
Diabetes:Children
Wiley Diabetes website

 

 


 

 

Accu-chek

 

 

Accu-Chek.co.uk is a diabetes resource for patients. If you have questions or need information about anything related to diabetes, we want you , the patient to easily find your answers here. This site is a tool - a tool you can use in whatever way suits you. By providing the information you need, we hope to help you help yourself. This site should be used as part of a total diabetes care plan - one that also includes the advice and recommendations of your doctor and Accu-Chek.co.uk. Accu-Chek.co.uk is operated by Roche Diagnostics Limited.

 

 

http://www.maketimeforhealth.org.uk

 

 

Health matters to us all, whoever we are. Whether we are young or old or from any section of the community - your views count. Now here's your chance to put the public at the heart of health and healthcare as never before - a new way of doing things. A large network of local health forums is being set up all over England. With legal powers - Patient and Public Involvement (PPI).  The PPI forums will be able to speak up for the public on health. First members for the new forums are being sought. Working with other PPI Forum members, you will: encourage others to get involved, find out what people really think about health locally and take action, independently watch over the quality of local healthcare, shape decisions which impact on your health, influence local and national decisions as part of a growing network of public involvement & be a force for fairness and change.

 

 

Virtual Diabetic Patient

 

 

A diabetic control program allows the selection of a clinical scenario in which the dose and type of insulin can be change. The insulin and glucose levels are displayed graphically over a 24hr period thus allowing monitoring of your 'patient' and management!

 

 

www.diabetesonestop.com

 

 


 

 

Novo Nordisk

 

 

A guide to using Novo Nordisk Insulins and Devices

Insulin Pumps

        http://www.insulin-pumpers.org.uk

        http://www.disetronic.co.uk

 

 

 

 

 

 

Useful Books

Hillson, R Diabetes: The Complete Guide - The Essential Introduction to Managing Diabetes. Vermilion
Haynes, A.J. The Insulin Factor: Can't Lose Weight? Can't Concentrate? Can't Resist Sugar? Could Syndrome X Be Your Problem? Thorsons



 

Disabilities

 

 

Disabled Living Foundation

 

 


 

 

Northern Advisory Group on Disability (NAGD)

 

 

The aims and objectives of NADG are to promote more efficient working of charitable and voluntary organisations of and for disabled people.

It is concerned with the well being of disabled people undertaken by voluntary groups in the areas of:
The Borough of Redcar Darlington
The Borough of Middlesborough Gateshead
The Borough of Stockton Newcastle
The Borough of Hartlepool Sunderland
North and South Tyneside
London
North and South Durham Cumbria and Districts


Dyslexia

 

 

British Dyslexia Assosiation

 

 

The BDA's role has been raising awareness of the evidence and effects of dyslexia. We now also aim to develop and encourage services that meet the needs of dyslexic people. In this way we will shape services to meet need. Our vision is of a dyslexia friendly society that will enable all dyslexic people to reach their potential. Currently the BDA is launching a "Wake up 2 Dyslexia" campaign in order to raise awareness of dyslexia and get funds for the BDA.


Eczema

 

 

National Eczema Society

 

 



Epilepsy

 

 

Epilepsy
The National Society for Epilepsy

 

 



Erectile Dysfunction

 

 

ABC of sexual health - Erectile dysfunction, BMJ 1999;318:387 ( 6 February )

 

 


 

 

UK management guidelines for erectile dysfunction - BMJ 2000;321:499-503 ( 19 August )

 

 



Facially Different

 

 

Let's Face It

 

 



Gastroenterology

 

 

British Digestive Foundation
ESPCG - eurogut

 

 

Website of the European Society of Primary Care Gastroenterology

 

 

Primary Care Society for Gastroenterology - PCSG
National Association of Colitis and Crohn's Disease

 

 



Geriatrics

 

 

British Geriatrics Society

 

 



Glaucoma

 

 

 

 

 

 

Useful websites

 

 

International Association for Glaucoma

 

 

Has over 14,500 members in 60 countries and campaigns for better detection methods for those at risk. Supports research into glaucoma its causes detection and treatment.

Gulf veteran's illnesses: information pack

The MoD has produced an information pack aimed at providing general practitioners and other health care professionals with information which they may find helpful in dealing with health issues raised by Gulf veterans. The site can be found at http:www.mod.uk/policy/gulfwar/index.htm Also at: http:www.gulfwar.mod.uk

Heart Disease

 

 

 

 

 

 

Useful websites

 

 

The National Heart Research Fund

 

 


 

 

The British Cardiac Association

 

 

Affectionately known as "The Zipper Club", is a non profit making organisation run by volunteers and established to provide support to cardiac patients and their carers.

 

 

British Cardiac Society
Cardio.net
UK Cardiomyopathy Organisation
Family Heart Association
British Heart Foundation
Library of 12-lead ECGs
Atrial Fibrillation (US)
Atrial Fibrillation - Anticoagulation guidelines

 

 


 

 

Initial Response Team

 

 

About C.I.R.T

For every 1000 people in this area one person will die of a heart attack this year. Less than 5% will survive without resuscitation and defibrillation in the first 8 minutes. A First Responder scheme can change this statistic!

The North East Ambulance Service and Lifesavers (The Royal Life Saving Society UK) have formed a working partnership. With the aim to bridge the gap between the `999' call to the emergency services and the arrival of the paramedics.

The aim is to establish a number of community based volunteer first responder groups, trained to respond to cardiac / collapse victims and to deliver first aid until an ambulance arrives. This is not a subsitute to the ambulance service but an additional response, an ambulance will always be dispatched before a Community First Responder.

Studies have shown that if a series of events take place in a set sequence, a heart attack victim has a greater chance of survival. The events listed are known as the "Chain of Survival".

• Early Access
• Early Resuscitation
• Early Defibrillation
• Early Advanced Life Support

When put into practice by increasing public awareness, training in basic life support and use of community based defibrillators, this set sequence has improved the pre-hospital survival rate by between 25% - 30%.

This web site covers the group, however there are groups in other parts of the country!


Hepatitis

 

 

Hepatitis Network

 

 


 

 

Hepatitis C Awareness - an NHS official site

 

 

The NHS hepatitis C website. It provides you with the facts about the disease and information about how to prevent it, what to do if you think you might be at risk, treatment and useful advice if you have been diagnosed. There are answers to frequently asked questions about hepatitis C, materials that you can download and links to sources of additional information.

Hyperlipidaemia

 

 

Hyperlipidaemia - St James' Hospital Dublin
Hyperlipidaemia - Sunderland Health Authority
Hyperlipidaemia - International Task Force for Prevention of Coronary Heart Disease
The British Hyperlipidaemia Assosiation
Information for Patients - Netdoctor

 

 



Hypertension

 

 

 

 

 

 

Useful websites

 

 

InCirculation

 

 

InCirculation.net is the educational resource for healthcare professionals providing access to internationally-focused cardiovascular information on the internet. You can review the latest news articles without logging in, but registration allows you to access all the information and have the choice of receiving an e-mail informing you of the latest updates to the site.

 

 

Blood Presure Association

 

 

The Blood Pressure Association is a young organisation - launched in October 2000 - and significant progress has been made already. A few of their activities are outlined here:

A fundamental part of their work is to draw attention to the need to improve detection, management and treatment - and through their ongoing "Know your Numbers!" campaign, they are determined that everyone in the UK will realise the importance of knowing what their blood pressure levels are. We run a national blood pressure testing week to raise interest and understanding of high blood pressure amongst the media and general population. This event also provides a research opportunity to gather up-to-date facts about people's awareness of the seriousness of high blood pressure, and their health habits.

They are represented on Government committees:

Understanding MS research

The MS Society has developed a support package for professionals working in primary care .... A guide to MS - for GPs and primary care teams

It has also produced a guide for professionals on MS and Palliative Care. This guide
'MS and Palliative Care - A guide for health and social care professionals' will help health and social care professionals to meet the palliative care needs of people who are severely affected by MS. It is also available in hard copy - please email Service Development team
or phone 020 8438 0742.

 

 

The Multiple Sclerosis Resource Centre

 

 

The Multiple Sclerosis Resource Centre is about you, whether you have been diagnosed with MS recently or for years, or if you are a relative, friend, carer, a professional in the field of MS or just plain interested in Multiple Sclerosis.

 

 

The National Multiple Sclerosis Society

 

 

The Society and its network of chapters nationwide promote research, educate, advocate on critical issues, and organize a wide range of programs— including support for the newly diagnosed and those living with MS over time.

 

 

International Federation of Multiple Sclerosis Societies

 

 

A comprehensive, international and up to date information resource developed by MS experts worldwide.

Neuropathy

 

 

The Neuropathy Association
Peripheral Neuropathy Trust
Diabetic Neuropathy
Diabetic Neuropathy

 

 



Osteoporosis

 

 

National Osteoporosis Society

 

 



Paediatrics

 

 

Foundation for the Study of Infant Deaths
Child Accident Prevention Trust

 

 



Parkinson's Disease

 

 

Parkinson's Disease Society

 

 



Plastic Surgery

 

 

Plastic Surgery

 

 



Pregnancy

 

 

Twins & Multiple Births Association

 

 



 

 

Spina Bifida & Hydrocephalus

 

 



Prostatic Disease

 

 

Prostate Forum
Prostate Help Association
Bristol Urological Institute
University of Birmingham's Institute for Cancer Studies
Benign prostatic hypertrophy
Benign prostatic hypertrophy - Treatment options

 

 



Psoriasis

 

 

The Psoriasis Association

 

 







Sexually transmitted infections

 

 

The Bure Clinic

 

 

The Bure Clinic is a GUM clinic run by the James Paget Hospital NHS Trust, Great Yarmouth. It has information on all the common STIs in a question-and-answer format.

 

 

 

 

Obtain a Cd-rom on STIs

 

 

More than 3,700 London residents have had a sexually transmitted infection in the last year - Newcastle GUM Clinic Annual Report 1997. Check out how to be a perfect lover on the net http://www.perfect-lover.org


Spinal Injury

 

 

Spinal Injuries Association

 

 

Are the national organisation of spinal cord injured people. Representing all of their interests regardless of how the impairment occurred, whether or not it has resulted in full or partial paralysis.

Stroke

 

 

The Stroke Association
Journal of Stroke and Cardiovascular Diseases
An information guide for stroke survivors and their families
Different Strokes
Walton Day Centre - Stroke Group

 

 



Thyroid Disease

 

 

British Thyroid Association
Thyroid Foundation of America(USA)
Thyroid Federation International(USA)
www.endocrineweb.com(USA)
Thyroid Society(USA)

 

 



Tinnitus

 

 

British Tinnitus Association

 

 

 

 

Offering
  • information & support
  • awareness & education
  • local groups & contacts
  • research







Women's Health

 

 

http://www.womens-health.co.uk/

 

 

This site strives to improve the availability of accurate health information for women. Focusing on reproductive issues, visitors to this site will find articles on pregnancy, infertility, miscarriage, PCOS, endometriosis, pregnancy complications and other issues important to a woman's well-being. Women’s Health was originally created by Dr. Danny Tucker in 1997. Dr. Tucker is a consultant Obstetrician & Gynaecologist in Taranaki, New Zealand

 

http://www.bbc.co.uk/health/womens_health/

 

Information and advice on the most common health issues affecting women, including breast cancer, eating disorders, heart disease, depression and fertility

 

 

 

 

 

 

 

The telephone Helpline of the National Asthma Campaing offers independent information, support and advice to people with asthma, their families, and carers. It also gives advice to health care professionals, social workers and teachers. In fact anyone with an interest in asthma. All calls are dealt with in confidence and the advice offered is unbiased and independent. It is not a substitute to seeing a doctor or nurse but should be seen as a valuable resource complimenting the former with educational material and additional information. Where appropriate calls are followed up with educational literature. The National Asthma Campaign produces a wide range of free booklets and factsheets for patients, a Management Pack for health professionals and a School Pack to help teachers.

 

 

 

 

 

 

 

 

 

Allergy UK is the country's leading medical charity dealing with allergy and we are here to help you.

Our dedicated helpline is manned by a team of fully trained allergy advisors. However, it's not just a helpline - in fact, it's a lifeline, providing invaluable support and information for allergy sufferers.

We can give you the time and support that is so important when faced with what can be life changing conditions.

Allergy UK is the country's leading medical charity dealing with allergy and we are here to help you.

Our dedicated helpline is manned by a team of fully trained allergy advisors. However, it's not just a helpline - in fact, it's a lifeline, providing invaluable support and information for allergy sufferers.

We can give you the time and support that is so important when faced with what can be life changing conditions.